1. First off get your epipen or AuviQ and carry it with you. No matter what. Even if you’ve never been in anaphylactic shock you can go into anaphylactic shock. Every reaction is different and reactions can get worse.
2. Read Everything, learn everything about your food allergy. The more you know the better off you are.
3. The top Food allergies in the U.S. are shown on the back of the box, if you have an allergy to say corn or sesame you have to know all the names they go by or else you could have an reaction because of it.
4. Food allergies can be serious, they can be deadly, put that in your mind. Let yourself take your food allergy serious.
5. Please don’t feel silly for asking questions, don’t worry about bothering someone at a restaurant or at the coffee shop, its okay just leave a good tip. You aren’t bothering them. Going into anaphylactic shock is more of a bother then asking questions.
6. It’s okay to cry in the store when you find out you can’t have something you wanted. Thats totally acceptable.
7. It gets easier, I know you’ve most likely heard this, but it does. I promise it gets easier everyday.
8. You won’t get a break. You won’t get a day off, but personally after having food allergies for over 5 years now I go days without really thinking much about it.
9. You will start to check every label even when you aren’t eating. Its sorta funny.
10. This isn’t the end of the world, that was in 2012 right?
11. Food allergies… They are just there.. Keep up the good work you can do it.

 

I promise that food allergies will get easier with time. But they also get weirder and funnier, I’ve laughed as I rode in the back of the ambulance, epipens will never really get easier to use but you will have a strange love for them. Because when they save your life you will love it for doing so.

 

This has been Shay-De Foodie Friday..

Shayweasel it!!

 

I like books, oh my goodness I like books, I read all the time. If I don’t have a book to read I get highly annoyed with life and worry that I might attack someone.

Reading doesn’t come easy for me but the challenge is a challenge accepted. I enjoy it because I get to go to so many different places. I feel like I get the chance to understand things I never thought I would understand. I get to go inside someone else’s world.

Its an amazing thing. How we get the chance to read, we get to be someone else for a day, for an hour, for a moment in time your life is left behind and you are reading a book.

I know the world is a big place with lots to see and lots to do, but when you pick up a book you get to see and do things you might never get the chance to do.

I love books. I’m thankful for all the books. I like real life books and I like fantasy books, I like books on real people who have lived before, I like books about animals, and I like books with lots of random photos.

The first time I read Anne Frank I cried. It was the first book to make me cry. The first time I read Each Little Bird That Sings my world changed, I had been going through  something in my life like the girl in the book. I understood her and I felt like she understand me even though she wasn’t real. I felt not so lonely.

My librarian who knew me by name when I was in living in Seaboard a small town full of older people who all loved me, the library was a happy place for me. I hear its that way for a lot of people.

The first time I read Twilight I didn’t think this is corny I thought this is like a weird way of writing a story. I fell in  love with Bella because she thought like me. And the first time I read New Moon I called my sister Vana like nine times during it and went on about how much Bella was just like us. It was a strange thing yet she understood.

Books take you to other world. They make the world different and I love it.

When I read Sarah Dessen books I can’t help but love everything about it. I fall in love with each and everyone in the book. Some of the places Sarah Dessen has set her books have been places I’ve been and that made me feel so amazing.

When I found the book How NOT To Be Popular in 2009 I laughed out loud while reading. I felt so much emotion. Its still to this day one of my top favourite books. I adore it with my soul Its amazing.

Hoot, Holes and Because Of Winn-Dixie are some of the books that I fell in love with first. Hoot because it was amazing story with loves of weirdness and so much love. Holes because it took me to all kinds of places and I loved to go somewhere I had never been. And Because of Winn-Dixie because I had a small dog with a cute smile and who hated stormy weather.

 

I’m thankful for books. Because without them I would have never left a house in Paris at Half past Nine I would have never put my left foot, right foot, right foot, Right! I would have never walked to grandma’s house through the woods, I would have never been to Hogwarts. I would have been to Chicago in the future. I wouldn’t know words and names that mean more me to me.

 I wouldn’t be someone who can say lines from books, be someone else for an hour. So I’m gonna go and get lost in a book. I’m gonna go and become someone else for two hours and when you see me again maybe I will understand someone else better..

 

  Getting lost…

 

Shayweaseling it….

I’m not disabled, that’s how I seen it. I have different abilities than most, I can remember almost anything, I can smell some numbers and some words feel funny. I don’t like being around to many people at once, I’m not great with loud noises.

I am good at a lot of things. Nannying being one. I work as a nannying and I love it. Children and me normally get along. I love children. They are fantastically.

 

I also have chronic illnesses, Autism, happens to be one, but it doesn’t change who I am but I feel like sometimes it changes the way people see me. I don’t normally just come out to someone and say “hey, hey, hey I’m autistic” but I’ll tell them sometimes when its important for them to know.

People act like things like being in a wheelchair or being unable to walk long ways or being chronically sick and in and out of the hospitals are such a horrible and disabilities life to live.

 

I mean people see it as the worst thing sometimes but its not that bad. Its just kind of well life. I like life, Its weird and random. I’ve met amazing nurses and doctors and I have made amazing friends who also have chronic illnesses I wouldn’t have met them if it wasn’t for my illnesses.

Its not a disability I have it’s a different ability. I can do a whole lot, and there are some things I can’t do but aren’t all humans bad at some stuff and good at others, I really enjoy writing and reading. I happen to be bad at telling people my emotions sometimes. But thats not a disability its a different ability.

I wish people would understand that it’s not all hard, a lot of it is good. I have a different life not disadvantage life. I don’t wish my brain and body worked different I’m okay with this body that doesn’t stay together and doesn’t digest food and doesn’t work like it should or make hormones I’m okay with all of that because I am able to live. I’m not disabled to live. I’m not dead, I’m alive and I’m well.

 Life isn’t all bad life is good. Life is amazing. We aren’t disabled in a wheelchair, or disabled in the mind, we are different but we are amazing. It just takes time to know how amazing we are. So give us a chance.  

Let me start….

 

1. They are hard to deal with, but that doesn’t mean impossible. I hate it when people act like having food allergies sounds like the worst thing that could ever happen.
2. I can’t eat the food I’m allergic to. Doesn’t matter if its organic or if its grown in a field of only flowers. I can’t eat it.
3. I did hear they are working on a cure, I most likely heard it before you, like a while ago. Thanks for the update.
4. When I say I can’t eat something please just take my word.
5. I’m picky yes, but if I wasn’t picky I’d die, from anaphylaxis. If I seem rude for not eating something at your party just know if I did eat it, I’d most likely ruin your party by having an ambulance come and pick me up.
6. You have to ask questions if you don’t ask questions then you could end up sick or dead.
7. I can die from the smell and touch of some foods, if you have popcorn be careful not to touch me after eating it. You might hurt me, and I promise you thats not what you want. Just please listen.
8. They are serious and dangerous. And can be deadly.
9. Being “Too Careful” isn’t a thing. You can never be too careful. Food allergies are serious and if not careful can kill me and other people please take just seriously.
10. I read every label, I can tell you almost everything that is in my food. Its kind of cool, or I think it is.
11. I’m going to be okay, as long as I am careful. Food Allergies are hard but they aren’t as hard as you think they are.

This has been Shay-De Foodie Friday!!! 

Shayweaseling it!! 

1. The fact that I have been alive for 23 years is amazing!
2. To meet Macy in person!! (Hopefully summer sometime!)
3. I can’t wait for my Niece Wavey’s first birthday
4. Hopefully get some new doctors and treatment!!
5. Finding new books to read
6. To see my nephew Carson get fully adopted out of foster care.
7. Being able to keep working and making this blog and website better!!
8. Seeing my nieces and nephews get more amazing
9. Watching Rory turn four years old!
10. Going to the beach
11. To listen to all the new music that comes out!
12. To see the world become better
13. For Walking Dead to come back on in October… Let me be honest
14. For my parents 30th anniversary this year!
15. Not vomiting everyday… That’s more of a hope but I’d be really excited if that happened..
16. To get new glasses!
17. Halloween and Scream Queens!!
18. Making 100 post on my website!
19. All the projects I have working on and to be able to show them to the world!
20. Working to make myself a better person each day!
21. Going on roadtrip… It will happen.. Always does!
22. Making art!
23. Living…Being able to breath and laugh everyday.

1. I really don’t like being around a lot of people and thats okay. I knew this was true but I accepted it this year.
2. Emojis make text convos really funny.
3. I seriously love reality TV shows and children cartoons!!!
4. Ice Cream really does heal things.
5. Dye Free Children’s Benadryl from Walgreens does really taste the best.
6. Some diseases have no cure and no treatment and they need one..
7. I freaking love dance moms it’s so dramatic when I watch it I forget about my life
8. Meeting People online can become really good friends!!! (Hey Macy, Hey Aileen)
9. I can get ready really fast. Adding on to that I don’t need makeup to look good.
10. I’m a really good photographer, I’m proud of that.
11. Wearing a Medical ID bracelet does make me feel safer, Adding on to that one Anaphylaxis is horrifyingly scary.
12. The Medical world can suck but I have Spoonie friends to complain to – Also learned what spoonies are (chronically Ill people)
13. Blogs aren’t just for moms and moody teens there is a lot of really awesome blogs.
14. EDM is pretty awesome, and no I couldn’t go to a show of an EDM artist because they would have lots of flashing lights which is one possible way to send Shay into a seizure but their music is pretty awesome and I like that.
15. I love walking around stores like target and ross, and not buying anything. Its like people watching with weirdness and random items.
16. There are always lots of opinions, you just have to know them. I don’t have to say yes to anything I don’t feel comfortably with. and No is an acceptable answer.
17. There is a yoga move for everything in life. Stress? Got that! Anger? Got it! Every emotion has a yoga move.
18. I have a weird act for finding videos and them becoming popular a month or weeks later. Its strange… It happened so many times.
19. I’m addicted to itunes.. I have a problem but no you may not help me with it unless by helping you mean buying me iTunes gift cards if that is the case you may help as much as you please!!
20. Life is random
21. When all else fails eat ice cream, yogurt, and drink out of glass water bottles.
22. I’m a wonderful person I’ll make mistakes and the past really does stay in the past. I love my life

That was what I learned over the past year, I guess you could say this year changed my life, but really every year, every day, every moment, changes your life in some ways.

Happy Birthday to me!!!

 

1. My family is really cool, they do love me and they do care about me. I have a great family and they make my life better not worse.
2. I’m different then other people, but that’s okay, I never needed to be like everyone else anyway. I shouldn’t have tried so hard.
3. Life goes on without people, no matter how much you love someone when they die you have to move on but not forget them. I have lost people all my life but losing my Grandma Rosa and losing my small service dog Beng rocked my world, and losing my adopted grandpa CC, all have been so hard to handle, but I really can get through it.
4. My boobs are… Noticeably…. well sized and that is acceptable.
5. I’m not perfect, I make mistakes and so does everyone else.
6. I really do love reality TV shows and I’ve really had to accepted this fact this year. Its been hard.
7. I have chronic illness.
8. I’m sick.
9. I don’t need to try to fit in.
10. I have autism and it will never go away. I embraced that I had it years ago but I accepted it fully this year.
11. I like to think.. And think is an acceptable thing to do.
12. I really do get fed up with people easily and I’m accepting this as something that will always happen but it doesn’t mean I need to get mad at them.
13. Doctors are really annoying and they suck sometimes but it doesn’t mean all doctors are that way there are good doctors out there and they can be found. And they will help.
14. My body will keep failing me but I won’t fail it.
15. Dying isn’t that horrifying. And neither is death.
16. My life will be bad sometimes but that doesn’t mean I have to be bad.
17. I can be a pollyanna type person and still be an adult.
18. I’m an adult. And can vote and I sign papers and yea…
19. I am human I have rights I have a voice and I’m smart. I can talk I can speak and I can speak up when need be.
20. I will always get to be my ever changing self and thats a wonderful thing.
21. I don’t ever have to get married or be in a sexual relationship for my life to matter, I do whatever I want
22. I’m happy. I have emotions.