Ehlers-Danlos Syndrome

  

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Ehlers Danlos Syndrome (EDS) is the term given to a whole collection of inherited conditions that fit into a larger group known as hereditary disorders of connective tissue. Connective tissues provide support in skin, tendons, ligaments and bones. There are several different, distinct types of EDS, but they have some features in common. These can include joint hypermobility (increased mobility of joints), stretchy skin and tissue fragility.

 

  Individuals with Hypermobility Ehlers-Danlos Syndrome may have the following features: Joint hypermobility with the joints having a wider range of movement than usual. Loose, unstable joints that can lead to dislocations and subluxations. Joint pain and fatigue. Easy bruising. Gastrointestinal dysfunction. POTS (postural orthostatic tachycardia syndrome) causing fast heart rate, dizziness and fainting. Mitral valve prolapse, a heart valve abnormality which is usually only mild in HEDS. Uterine, rectal or bladder prolapse. Urinary dysfunction. Varicose veins.

 

 There are other types of Ehlers-Danlos Syndrome, I personally have been diagnosed with Ehlers-Danlos Syndrome Type III, kyphoscoliosis, And possibly vascular type.

 

 The joint hypermobility causes me lots of pain, I need the use of a walker when walking, My joints pop out of place on a daily basis, My doctors are working what the next steps we need to do for my joints and for the other things.

 

 EDS is something I was born with and I will die with it. I have problems with my Gastrointestinal Track and I have Kyphosis due to EDS, Kyphosis is a forward rounding of the back. Some rounding is normal, but the term “kyphosis” usually refers to an exaggerated rounding of the back. I basically have a “Old Lady Hump” But I’ve always loved old ladies so I guess I just wanted to be like them!! (Hehe)

 

 The  POTS (postural orthostatic tachycardia syndrome) you can learn more about that by clicking here 


  I have subluxations and dislocations on a daily basis, but because I do not have collagen in my joints I do not have it on the inside of my body as well, which is why it causes problems with gastrointestinal and bladder and with my heart.

If you want to learn more about EDS click here