New More Weirder? Food Allergies..

I didn’t write a Shay-De Foodie Friday last week because… Well it didn’t happen mainly because I learned I have more food allergies and was diagnosed with a disease. I was overwhelmed by the thought of food..

Let alone writing a blog post about food.. I get nervous when I get told I have around 40 food allergies.. I’m allergic to so many thing I don’t know what safe food is..

Or that’s how it feels. See even someone who has food allergies for a while gets nervous when I get a new food allergy.. Food allergies are serious… I try to remind myself that i’ve had food allergies for a while and I’m still alive. I will make mistakes, anaphylaxis and allergic reactions will happen and that’s okay.

Food allergies are a big deal they do change things and that’s okay. It doesn’t matter if you have one food allergy or 90 food allergies they make a difference. I over the course of a weekend and a couple days am having trying finding food. I don’t want to hurt my body. I want to keep it safe.

Food allergies aren’t an easy task, they are hard sometimes and sometimes they are easy. I don’t mind having food allergies, sometimes I wish I had less food allergies maybe like 7? I could do 7 easier but what I am allergic to is okay… It’s okay to be allergic to something. Life can get better life can be okay with food allergies.

I get to live my life food allergies come up daily but so does my knee pain, so does my family so does my life… Everyday when I think about my food allergies I’m glad I’m able to think about them… Soo… Yea

This has been Shady-De Foodie Friday…
Shayweaseling out…

Hospital coffee…

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When my papa was in the hospital when they told us he might die, I went down and got some coffee… Hopsital coffee.. it’s strange kind of coffee, strong yet good..

Waiting for my Niece Rory to be born… I went and got coffee… Hospital Coffee.. I sat down and thought of everyone there..

When My niece Wavey was taking her sweet time to be born. I walked down and got coffee. Hospital coffee.

When my grandma was sick and we all knew she was gonna get the pleasure of going to heaven… I got some hospital coffee

And this past Tuesday when my doctor told me I have a disease called Eosinophilic Esophagitis I went and got coffee.. hospital coffee.  I sat down… And I looked around and nothing was really that different I just had another name for another illnesses thats making my body a medically fun one..

I find peace in hospital coffee.. I find peace sitting with a cup of coffee with one sugar and some milk or half and half…. I take comfort in a strong taste and a good taste in my mouth, I find peace with all the people walking past looking happy and dazed some tired and some hooked up to IV poles.. I find peace in a strange thing..

I find peace in hospital coffee.. I find this taste of coffee when everything isn’t going my way. I just partly want some hospital coffee.. My papa is still alive, both my nieces are growing and being amazing. My illnesses are having a field day with my body, it’s attacking things and it’s having fun…

When I sit with my hospital coffee, my world is normally changing becoming different if it’s getting someone into the world or letting someone leave, or if it’s you or someone else getting a diagnosis or if its sickness… Hospital coffee is my go to answer for the questions of my life that I never meant to ask…

So next time I’m holding a hospital coffee in my hand and next time my world is changing next time my body gets worse or next time my epi pen must come into play know I’m totally gonna need some hospital coffee to go along with it…

So thank you doctors and nurses for drinking tons of coffee so that the hospital always has coffee…

My little world full of doctors appointments and hospital stays and scary days and funny ways I’ve got hospital coffee to make me smile..

Shayweasel it…

Finding My New Moon..

When I was 17 years old I went to California everyone I knew was shocked by what I was doing, I wasn’t one to step out of my comfort zone much, this was a big step. I at the time was living in North Carolina and California is a far way away. So I went and had a wonderfulish time. I met some great people and some not so great people but when I came back, it had been a year of living at home without any of my siblings all of them are older then me and had left for either college or jobs, it was sad and it was weird, but I think honestly I just missed them.

My sister Vana who told me she would pay me in Ice Cream to read twilight wasn’t joking, she brought me the book from the library when she came home one weekend and some ice cream.

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right around this time I was starting to become ill, and we weren’t sure why. I was going through some test and things, and would take the Twilight book with me to each appointment, it was then that we found out that I was allergic to about nine foods, some being corn, wheat, soy and nuts. If you know anything about food you know that that cuts out over 75% of processed food. My life changed real fast.

But I sat and took this news, and went home and read Twilight more. My sister came home a few weeks later after I had finished the book she brought me the next book New Moon. This book was her favourite but she wouldn’t tell me why. We went the store and walked up and down the ice cream aisle looking for ice cream I could eat we didn’t find any that day but I told her I would read New Moon.

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I love New Moon, it’s become this thing that I do when I get real sick or when I’m having a bad day, I pick up New Moon and I read. I read for hours. I think it’s become like a safety blanket to me. Its something that comforts me.

I think when I read New Moon, I basically had gotten my own new moon, I was set on a path not one i would have choose, I was set on a path of the sickness, my body was then starting to fail me. I had changed my life and it wasn’t by my choosing. I found my own new moon, in a sky full of stars and lots of darkness..

When I went through stuff as a 17 year old I read it and now I read it. Its why me and my sister Vana can write I need to read New Moon to each other and both of us understand that we aren’t doing fabulous.

I’ve learned a lot about food allergies since then and have found ways to have and make everything. But it’s just that when you find something that comforts you.. stick with it.

New Moon is like my safe place, Bella understands me. Vana understands me. My life is fading away when I read it, and for a moment I can forget about the pain…

I have found my own new moon, I have been on this weird way of living but its still good. I don’t look for happiness all the time, I look for the new moon, because its always there even when I don’t see it right away. I just have to look past the darkness in the sky and look past the stars and the planets to find a weird new moon just being in the sky. Life goes hard but remember it can always get better and worse, but the better can be made from the worse. You don’t have to look for the darkness it just shows up, but you can look for the light, that little new moon. That safe place. Don’t look for dark look for the moon. Its barely light but just enough….

Thanks for reading..
Shayweas out…

To A Person Newly Diagnosed With Food Allergies

 

  1. First off get your epipen or AuviQ and carry it with you. No matter what. Even if you’ve never been in anaphylactic shock you can go into anaphylactic shock. Every reaction is different and reactions can get worse.
  2. Read Everything, learn everything about your food allergy. The more you know the better off you are.
  3. The top Food allergies in the U.S. are shown on the back of the box, if you have an allergy to say corn or sesame you have to know all the names they go by or else you could have an reaction because of it.
  4. Food allergies can be serious, they can be deadly, put that in your mind. Let yourself take your food allergy serious.
  5. Please don’t feel silly for asking questions, don’t worry about bothering someone at a restaurant or at the coffee shop, its okay just leave a good tip. You aren’t bothering them. Going into anaphylactic shock is more of a bother then asking questions.
  6. It’s okay to cry in the store when you find out you can’t have something you wanted. Thats totally acceptable.
  7. It gets easier, I know you’ve most likely heard this, but it does. I promise it gets easier everyday.
  8. You won’t get a break. You won’t get a day off, but personally after having food allergies for over 5 years now I go days without really thinking much about it.
  9. You will start to check every label even when you aren’t eating. Its sorta funny.
  10. This isn’t the end of the world, that was in 2012 right?
  11. Food allergies… They are just there.. Keep up the good work you can do it.

 

I promise that food allergies will get easier with time. But they also get weirder and funnier, I’ve laughed as I rode in the back of the ambulance, epipens will never really get easier to use but you will have a strange love for them. Because when they save your life you will love it for doing so.

 

This has been Shay-De Foodie Friday..


Shayweasel it!!

Reading In Peace

 

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I like books, oh my goodness I like books, I read all the time. If I don’t have a book to read I get highly annoyed with life and worry that I might attack someone.

Reading doesn’t come easy for me but the challenge is a challenge accepted. I enjoy it because I get to go to so many different places. I feel like I get the chance to understand things I never thought I would understand. I get to go inside someone else’s world.

Its an amazing thing. How we get the chance to read, we get to be someone else for a day, for an hour, for a moment in time your life is left behind and you are reading a book.

I know the world is a big place with lots to see and lots to do, but when you pick up a book you get to see and do things you might never get the chance to do.

I love books. I’m thankful for all the books. I like real life books and I like fantasy books, I like books on real people who have lived before, I like books about animals, and I like books with lots of random photos.

The first time I read Anne Frank I cried. It was the first book to make me cry. The first time I read Each Little Bird That Sings my world changed, I had been going through  something in my life like the girl in the book. I understood her and I felt like she understand me even though she wasn’t real. I felt not so lonely.

My librarian who knew me by name when I was in living in Seaboard a small town full of older people who all loved me, the library was a happy place for me. I hear its that way for a lot of people.

The first time I read Twilight I didn’t think this is corny I thought this is like a weird way of writing a story. I fell in  love with Bella because she thought like me. And the first time I read New Moon I called my sister Vana like nine times during it and went on about how much Bella was just like us. It was a strange thing yet she understood.

Books take you to other world. They make the world different and I love it.

When I read Sarah Dessen books I can’t help but love everything about it. I fall in love with each and everyone in the book. Some of the places Sarah Dessen has set her books have been places I’ve been and that made me feel so amazing.

When I found the book How NOT To Be Popular in 2009 I laughed out loud while reading. I felt so much emotion. Its still to this day one of my top favourite books. I adore it with my soul Its amazing.

Hoot, Holes and Because Of Winn-Dixie are some of the books that I fell in love with first. Hoot because it was amazing story with loves of weirdness and so much love. Holes because it took me to all kinds of places and I loved to go somewhere I had never been. And Because of Winn-Dixie because I had a small dog with a cute smile and who hated stormy weather.

 

I’m thankful for books. Because without them I would have never left a house in Paris at Half past Nine I would have never put my left foot, right foot, right foot, Right! I would have never walked to grandma’s house through the woods, I would have never been to Hogwarts. I would have been to Chicago in the future. I wouldn’t know words and names that mean more me to me.

 I wouldn’t be someone who can say lines from books, be someone else for an hour. So I’m gonna go and get lost in a book. I’m gonna go and become someone else for two hours and when you see me again maybe I will understand someone else better..

 

  Getting lost…

 

Shayweaseling it….