1. First off get your epipen or AuviQ and carry it with you. No matter what. Even if you’ve never been in anaphylactic shock you can go into anaphylactic shock. Every reaction is different and reactions can get worse.
2. Read Everything, learn everything about your food allergy. The more you know the better off you are.
3. The top Food allergies in the U.S. are shown on the back of the box, if you have an allergy to say corn or sesame you have to know all the names they go by or else you could have an reaction because of it.
4. Food allergies can be serious, they can be deadly, put that in your mind. Let yourself take your food allergy serious.
5. Please don’t feel silly for asking questions, don’t worry about bothering someone at a restaurant or at the coffee shop, its okay just leave a good tip. You aren’t bothering them. Going into anaphylactic shock is more of a bother then asking questions.
6. It’s okay to cry in the store when you find out you can’t have something you wanted. Thats totally acceptable.
7. It gets easier, I know you’ve most likely heard this, but it does. I promise it gets easier everyday.
8. You won’t get a break. You won’t get a day off, but personally after having food allergies for over 5 years now I go days without really thinking much about it.
9. You will start to check every label even when you aren’t eating. Its sorta funny.
10. This isn’t the end of the world, that was in 2012 right?
11. Food allergies… They are just there.. Keep up the good work you can do it.

 

I promise that food allergies will get easier with time. But they also get weirder and funnier, I’ve laughed as I rode in the back of the ambulance, epipens will never really get easier to use but you will have a strange love for them. Because when they save your life you will love it for doing so.

 

This has been Shay-De Foodie Friday..

Shayweasel it!!

 

I like books, oh my goodness I like books, I read all the time. If I don’t have a book to read I get highly annoyed with life and worry that I might attack someone.

Reading doesn’t come easy for me but the challenge is a challenge accepted. I enjoy it because I get to go to so many different places. I feel like I get the chance to understand things I never thought I would understand. I get to go inside someone else’s world.

Its an amazing thing. How we get the chance to read, we get to be someone else for a day, for an hour, for a moment in time your life is left behind and you are reading a book.

I know the world is a big place with lots to see and lots to do, but when you pick up a book you get to see and do things you might never get the chance to do.

I love books. I’m thankful for all the books. I like real life books and I like fantasy books, I like books on real people who have lived before, I like books about animals, and I like books with lots of random photos.

The first time I read Anne Frank I cried. It was the first book to make me cry. The first time I read Each Little Bird That Sings my world changed, I had been going through  something in my life like the girl in the book. I understood her and I felt like she understand me even though she wasn’t real. I felt not so lonely.

My librarian who knew me by name when I was in living in Seaboard a small town full of older people who all loved me, the library was a happy place for me. I hear its that way for a lot of people.

The first time I read Twilight I didn’t think this is corny I thought this is like a weird way of writing a story. I fell in  love with Bella because she thought like me. And the first time I read New Moon I called my sister Vana like nine times during it and went on about how much Bella was just like us. It was a strange thing yet she understood.

Books take you to other world. They make the world different and I love it.

When I read Sarah Dessen books I can’t help but love everything about it. I fall in love with each and everyone in the book. Some of the places Sarah Dessen has set her books have been places I’ve been and that made me feel so amazing.

When I found the book How NOT To Be Popular in 2009 I laughed out loud while reading. I felt so much emotion. Its still to this day one of my top favourite books. I adore it with my soul Its amazing.

Hoot, Holes and Because Of Winn-Dixie are some of the books that I fell in love with first. Hoot because it was amazing story with loves of weirdness and so much love. Holes because it took me to all kinds of places and I loved to go somewhere I had never been. And Because of Winn-Dixie because I had a small dog with a cute smile and who hated stormy weather.

 

I’m thankful for books. Because without them I would have never left a house in Paris at Half past Nine I would have never put my left foot, right foot, right foot, Right! I would have never walked to grandma’s house through the woods, I would have never been to Hogwarts. I would have been to Chicago in the future. I wouldn’t know words and names that mean more me to me.

 I wouldn’t be someone who can say lines from books, be someone else for an hour. So I’m gonna go and get lost in a book. I’m gonna go and become someone else for two hours and when you see me again maybe I will understand someone else better..

 

  Getting lost…

 

Shayweaseling it….

I’m not disabled, that’s how I seen it. I have different abilities than most, I can remember almost anything, I can smell some numbers and some words feel funny. I don’t like being around to many people at once, I’m not great with loud noises.

I am good at a lot of things. Nannying being one. I work as a nannying and I love it. Children and me normally get along. I love children. They are fantastically.

 

I also have chronic illnesses, Autism, happens to be one, but it doesn’t change who I am but I feel like sometimes it changes the way people see me. I don’t normally just come out to someone and say “hey, hey, hey I’m autistic” but I’ll tell them sometimes when its important for them to know.

People act like things like being in a wheelchair or being unable to walk long ways or being chronically sick and in and out of the hospitals are such a horrible and disabilities life to live.

 

I mean people see it as the worst thing sometimes but its not that bad. Its just kind of well life. I like life, Its weird and random. I’ve met amazing nurses and doctors and I have made amazing friends who also have chronic illnesses I wouldn’t have met them if it wasn’t for my illnesses.

Its not a disability I have it’s a different ability. I can do a whole lot, and there are some things I can’t do but aren’t all humans bad at some stuff and good at others, I really enjoy writing and reading. I happen to be bad at telling people my emotions sometimes. But thats not a disability its a different ability.

I wish people would understand that it’s not all hard, a lot of it is good. I have a different life not disadvantage life. I don’t wish my brain and body worked different I’m okay with this body that doesn’t stay together and doesn’t digest food and doesn’t work like it should or make hormones I’m okay with all of that because I am able to live. I’m not disabled to live. I’m not dead, I’m alive and I’m well.

 Life isn’t all bad life is good. Life is amazing. We aren’t disabled in a wheelchair, or disabled in the mind, we are different but we are amazing. It just takes time to know how amazing we are. So give us a chance.