corn allergy

living with your parents.. as an adult

/ Shannon DeRose / 1 Comment
This is pigacorn.. my papa enjoys setting her up around the house in places like this….

I obviously live with my parents! In 2016 my parents and myself decided to move in to a small townhouse in Beaufort. We moved together. I had been living in va beach and they had been living in Raleigh area.

I have to say the first year was hard. Understanding what each of us wanted and needed for and from each other. And how we worked and figuring it all out.

I was not doing anywhere near good health wise and neither where they and we didn’t have much money. And didn’t know what was happening or going to happen.

But we finally figure each other out mostly. And since then it’s gotten easy we figure how what to do what to say and what not to and it’s funnier then ever and we still have days where it’s hard. But mostly it’s good! Funny silly sweet and over all very very random!!

but here are 13 weird things about living with your parents…. As an adult!

13.

You start to truly notice the what your parents react to your other family members by friends by anyone. You see when they get hurt by others especially other family. And learn how to make them feel better!

12.

You know weirdly personal things about each other.…

11.

You start to know all of the times they take their meds and knowing every med they take. and knowing the way they act when they don’t take their meds and the way they act when they are taking them.

10.

You start to figure out if they are in pain without them every saying they are.

You also know how to relieve some pain from them if it’s just rubbing their back, watching something funny. Or just Not talking to them or just giving them a cookie whatever it is you know what you need or don’t need to do.

But you don’t always know…

9.

You know what they need help with and what they don’t want help with. And what they need help with but don’t want help with…

8.

I have some of the most random conversations with my parents. The other day me my mom and my papa had a long conversation about what the difference is in horror movies and scary movies or my mom and I having a long conversation about walkers in the walking dead changing over the course of the show.

7.

You know every tv show, movies, downton abbey, series they like and don’t like. And you know shows we watch together and shows we watch apart. And shows we watch when there is only two of us and on so.

And what things you like to do. Like for my papa studying the Bible and studying to teach different classes he teaches. going to talk to people. Watching tv being funny playing with the dogs!

For my mom it’s things like playing the piano. Singing, Cleaning and pricing the jewelry for the thrift store. Watching tv listening to music. Studying the Bible And talking to people watching the adorable tiny humans!

6.

You learn to look at all the scars of all the things they’ve gone through over the years. All the times you’ve hurt and they’ve hurt and come to realize how and why they do things. And how strong they are to be able to handle it all with such grace!

5.

You know when they are upset sad angry but not always sure what who or why they are upset or angry.

But you know ways to make it better. You learn ways to know how to see them listen to them. Or leave them alone. You still get it wrong sometimes but you try.

4.

Y’all can talk without saying anything… you just know… by looking at each other.

The other day while my mom was talking to someone. My papa and I without saying anything figured out if my mom took her meds and which one she forgot… we are weird sometimes.

You know them because you love them

3.

You know they are your parents but they slowly become like your friends in the weirdest way. You know how to talk to each other.

We have jokes and random things we say to each other. We laugh we cry we enjoy our random things..

If someone drops or makes a random loud noise or whatever we asks each other “are you ok?” Because when all three of us could fall and have fallen and got hurt. You wanna make sure.

My papa’s way of not way of doing the dishes if you can’t get into the dish then there are no dishes to be washed…

2.

You become comfortable with each other! You don’t feel weird or awkward at all around each other. You know how to make each other laugh. You have inside Jokes.

And do random things to make each other laugh or tease each other. Like my papa and my self like to take random little figurines or toys type things and put them in weird places all over the house! Rory loved this and always laughs and has fun when she comes!

We have quotes from movies, tv shows, random things we’ve said. Random things children around us have said! Like

Us to Eden a one year old we watch

“What’s the magic word?” – Meme

“Mine!” – Eden……

1.

You truly see them at their best. Their worse. You truly see how strong they are mentally, physically, emotionally, and more then any of them how strong they are spiritually!

I have more respect, love and amazement for my parents then i ever have! Daily I see them overcome things. See them be a shining light in so many peoples life. I see how much their simple things they don’t think are a big. How much of a big deal it is to so many.

I see the hours they put in to do all they. I see their struggles in ways I never have. I see them be brave. I see them be silly! I see them enjoy the simple things.

If it’s just sitting on the sofa and watching the nanny or the walking dead or random other shows! They have joy and find joy in so many things. So many different things. They are amazingly fabulous! But they find the biggest joy they find in the Lord.

Now it’s not always easy but it’s not always hard. It’s not always funny (but honestly most of the time it is!) but above all that it’s always full of love!

Shayweasel and her parents live together..

Feeding tube awareness

/ Shannon DeRose / Leave a comment

Feeding tube awareness is important. O have a feeding tube. I’ve had them on and off for the past few years.

I have had NJ tubes which go into your nose and to your small intestines and right now I have PEGJ tube which goes into my small intestines.

Every day I wake up and make my feeding tube forumla the kind I use is called real food blends. I put it in a blender with water. I then strain it into a bowl then wash the strainer off and the blender then I strain it into the blender again then I wash the strainer off and bowl off and then strain it back into the bowl and then wash the blender off and strainer and strain it into the blender I then get my feeding tube bags that I use and put the mixed strained real food blends into the bag. I close the bag turn the bag upside down and put my fingers on the blue longer part of the bag and squeeze lightly to get the air out of the bag and then prime the line that will connected to my feeding tube the one that goes into my PEGJ that hangs outside my stomach.

It takes lots of work but I would be doing this even if I was eating. I do this sometimes 3 times a day depending on what my body handles a day.

I’m thankful for this that saves my life

Shayweasel out

To The People Who Say I Talk About My Illnesses To Much

/ Shannon DeRose / 2 Comments

On a couple different occasions people have told me I talk about my illnesses too much..

 

We need to go back, to a moment….

When was the first time you heard about autism? How did you learn about peanut allergies? What was the first time you knew what Crohn’s disease was? What about cancer?? ….. Who told you these things? And if you say you read it on the Internet..

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Then someone had to talk about it for you to read it.. Someone had to write the words you wrote. Someone had to discuss what was going on inside their own body or someone close to them..

 

These things NEED to be talked about, how many life have been saved since people started talking about breast cancer? How many earlier screens have saved a life? How many people have known the symptoms of meningitis and knew when to go get help? How do you know to go to the doctor when you have the flu? Because you knew what to watch for…

 

Someone has to talk about these things for you to understand them…
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People don’t know normally what is Gastroparesis is or what it’s like having 9 food allergies let alone 40 food allergies.. And the only way we can find a cure the only way we can get better is… By talking about it..

 

And on the other hand.. When I do everything throughout the day I must think.. Is this food safe? Did I touch something? Did I get up too fast? Am I having an allergic reaction? Is my headache my normal headache or something more?

 

My body is failing me, I can’t go throughout a day without thinking about it.. I am not talking about my illnesses because I’m bored or have nothing else going on but because no matter what I do no matter how I handle my life. My illnesses control part of it. I must think about it because if I don’t.. I could kill myself. If I touched a walnut if I wasn’t paying attention to what I was eating, if I didn’t watch what I was doing. I could hurt even kill myself…

 

My illnesses don’t take breaks, my illnesses don’t take days off, my illnesses don’t get magically better with medicine.. My illnesses without meaning to have to control part of what I do because I am living in a body that is broken but no way to fix it…

So yes I talk about my illnesses a lot yes this is part of my life on a daily basis if I didn’t talk about it you wouldn’t know what it was or what I was going through. You wouldn’t understand how easily a peanut can kill me or corn, a tree nut, or even some food that I didn’t crew well… Something could kill me easily and by talking about it it could save me…

There is this part of me that wants you to know that the main reason I talk about it, is because if we don’t talk about it because if we say nothing then nothing will change.. We won’t get treatment… we won’t get a cure.. We won’t get better life because no one will be doing research about what’s going on inside our bodies.

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We not only need awareness we need understanding… We need help, because we need people to understand give us as much awareness as possible because then maybe we could save another life from pain and from being without a diagnoses and without help… Because people with chronic illnesses, rare diseases can go years in horrid pain without a diagnosis without any help, and without understanding…

 

So thankfully we have people who talk about rare diseases, chronic illnesses because maybe one day when I say I have EoE people will have as much understanding as they do for when someone says they have cancer..

I didn’t choose to get a rare disease I just got a few… So if I don’t talk about my rare disease no one will know..

 

So yes my diseases are sometimes the highlight of my life but it’s because it affects my life in every way…

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Thanks for reading about my talking about my illnesses, diseases can be invisible, which is why they are called invisible illnesses, we must first understand that awareness is the key..

 

If you want to talk about this more with me, leave a comment or email me, we can discuss the horridness of chronic and rare diseases,

 

Shayweasel out…

Best Chocolate Chip Cookies (Gluten-Free, Corn-Free, Nut-Free)

/ Shannon DeRose / 2 Comments

 

Now if I’m being honest, I’d tell you that I love eating cookies, and I do it so much that I’m pretty sure I’ve found ways to make my oatmeal taste like cookies.

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And if you give me a cake I’d be like I’m good, because its not cookies, so since I love cookies so much. When I was told that I was allergic to a lot foods, I had to go out and find ways to make different things.

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Cookies being one of them. Enjoy Life chocolate chip cookies have been a lifesaver because everyone knows I want chocolate chip cookies. So I use those a lot and oatmeal. I mean man am I blessed to not be allergic to oatmeal, I do love me some oatmeal

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But back to cookies so a few days ago I was wanting some chocolate chip cookies and I wanted them bad, so I pulled together everything I had to make them, and I, being me, was trying to find a recipe to work with and I couldn’t find a good one till, well, today. I found this recipe and I had to change it a tad, but it works and the cookies I made are so amazing.

So here is how you start off

Ingredients

eggs – 1 full egg and 1 egg yolk.

2 ½  cups flour (I used one and ¼  cup oatmeal flour and one and ¼  cup tapioca flour)

½ teaspoon baking soda

1 cup Brown Sugar packed

½ teaspoon salt

1 teaspoon vanilla extract

½ cup raw sugar (you can use white sugar I used raw)

¾ cup butter (I used dairy butter but any butter works.)

2 cups chocolate chips (I use enjoy life chocolate chips)

 

  1. I preheat the oven to 325 degrees F (165 degrees C) line cookie sheet with butter or cooking spray or parchment paper, I only had butter so I used butter and they worked good. (I basically just put butter all over the cookie sheet)
  2. Sift together flours, baking soda, and salt, set to the side.
  3. In a bigish bowl I used my kitchen aid that makes everything easier. Butter that has been at room temperature for a while (mine was about two hours) and sugars together, I let it blend together for about 5 minutes to get that creaminess I feel it works better.
  4. Add vanilla, egg and egg yolk and beat until well blended, (I let my eggs sit at room temperature for a little while you don’t have to do this step but I think it helps.)
  5. After the eggs and vanilla are really well mixed together add the flour, baking soda and salt, Now be careful not to add it to fast. I add it slowly and then just till its blended then add the chocolate chips and let sit at room temperature for about ten minutes if its still kind of not right looking let it sit longer.
  6. Put on pan anyway you please and then bake for 10-16 minutes my cookies happen to be big so they cooked for 16 minutes.
  7. Let cool and enjoy!

So that my best chocolate chip cookie recipe!! I hope you all have a good Shay-De foodie Friday!

Come back next Friday for more food recipes and come back Sunday for randomness and come back Wednesdays for Wesday the day where I rant about whatever I please!!

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