How To Handle Having A Caregiver

Here’s the thing when I typed “how to handle having a caregiver” into google I thought that it was gonna say things like letting someone helping you doesn’t mean your not an adult or they aren’t babysitting you and that this is needed those kinds of things but no this is what I found…

The articles none of them were pointed at the person who was sick, I find it so hard to have a caregiver to let someone help me.

I’m an adult and have to have someone come here and watch me?

As of 2018 I’ve become someone who has a caretaker, and a respite care worker. Two people that watch me most of the time. I don’t always know how to handle being cared for.

From the time your born you learn how to be independent. We learn to make sure to cry when we need something, we learn that being nice and smiling can help. That we learn to crawl to get something our selfs. We learn to walk so we can do things on our own.

We go to school so we can learn we do chores so we can be able to clean our homes when we are adults.

We learn to go use the to shower how to cook how to drive so we can do things all by ourselves.

As I get the blessing of living longer and longer I’ve been needing more and more help.

My respit caregiver is kind, and she helps me by really truly is here by just being here. With the diseases I have, it can change fast. I could hurt myself if I had a seizure if I had a a reaction. And so on so on.

I am learning to find this as a way for me to help someone have a job, to know this is ok

I’m learning to look at independence differently. To know I’m still an adult. I still need help but it doesn’t mean I’m lazy.

So how to have a caregiver- be kind, tell them if you need something even if you could possibly do it yourself but you know you shouldn’t, tell them thank you and be kind to them, if they make you feel uncomfortable say something to either them or the other people in your life. Think about them like the nurse on Monk solving crimes and someone walks around and helps him he’s still an adult. (We all know Natalie on Monk was way better then the first)

It’s not lazy. It’s not crazy.

Be kind be good be love

Shayweasel is sitting down

Be jealous of all this..

I’ve had a few people tell me they are jealous I can stay home and watch tv all day! Or that I’m able to read all the time! To be able to eat a bunch of calories and not worry about gaining weight or that I’m so skinny! But honestly if your gonna be jealous of something here

I’m very sassy!

I’m beautiful!

I’m creative!

My parents are steve and Sherri!

My niece Rory knows more then you do!

My niece Wavey is a very fiery red head!

I have twin sisters who are way more beautiful then any other twins!

My nephew Carson is very excitebul

My best friend Jazzy can tell you everyone in our favorite tv shows names!

All dogs love me!

I know every episode of the walking dead! And I’ve seen it twice!

My best friend Macy is one of the funniest people I know and has a great heart!

My sister Stephie is selfless and kind and always gives her helping hand on anything!

I am very good at finding my way around!

I can tell you weird facts about anything! Facts you never wanted to know!

My sister Sam is a quietly loud person with a heart of gold and kindness flows out of her!

I’ve been to Washington state during a toxic stuff released into the air be jealous of that somehow..

I have amazingly wonderful family!

I’m very good at sitting and talking!

I’m a great cook!

My friends are amazingly fab!

My best friend Dara is amazingly sweet and the best gift giver I’ve ever known!

My mom can paint wonderfully!! She can sing more amazing then anyone I know!!

My papa is an amazing reader singer and funny and wonderful at speaking!

My sister vana is super smart she always keeps herself doing things for others!

My brother Sean is one to ask if you have any questions about sports and cares so much about everyone no matter what!

My best friend Josephine can talk just as much as me!!!

This is what you should be jealous about! Be jealous of these friends these family theses facts theses laughs!!

Be jealous of all this!

Shayweasel isn’t jealous!

Open letter to the churches who support BCH

 

Dear Churches and People who support the Baptist Children’s Home of North Carolina. (BCH)

I’m angry. I’m very upset and as someone who has supported BCH I wanted you to know the truth. So here it is.

 

This business is run by, I don’t know how to put this so I’m going to put it like this, this place is like a bunch of anorexic models, they only care about what is on the outside and what looks good and they have no worry about how horribly they are hurting their bodies and the people around them. That is what the people who run BCH are like. This is who it is run by.

 

As you might not know to work for the Baptist Children’s Home of North Carolina, you do not need to be a Baptist, you don’t even need to go to church or believe in God. You don’t need to know a thing about the Lord to work here. And thats shocking. If this wasn’t mostly supported by churches then this wouldn’t be a big deal, but it is. It’s made a mission because of the people in the churches.

Your mission says its

“To provide the highest quality of Christian services to children, adults, and families in a caring culture of measurable excellence.”

But since you don’t have to be a Christian to work for you I’m not sure how you are holding out your mission. You can’t have it both ways. If The Baptist Children’s Home of North Carolina wants to take Baptist out of the name and just be a children’s home. I’d understand. But right now you have it in the name.

 

Most of the head people in charge of BCH are normally more worried about making the children dress and be pretty so they can showcase them and show them off and say look what we did? We changed them. Well truthfully this is the whole baptist children’s home, all of them are all about looking good having numbers saying we saved and we reached 5000 people this year and we are doing great. But if you dress children and women up and say look they are all good but if you don’t change someones heart you don’t do anything, so good job you reached 5000 people but you only changed the outside the inside is still hurting and the inside is still broken you might have reached them but you didn’t touch them. You didn’t heal them. Numbers say nothing. Numbers mean nothing.

 

You can get someone to look like a beautifully wonderful person on the outside but again its just like an anorexic. It’s not okay to what they are doing, if we are suppose to be the body of Christ, then this body of Christ thats at BCH is anorexic and in dying need of being feed by some Very Godly and people who are fully in wrapped in the Lord, and no money and nothing could shake them. Because the people who run this place have starved the baptist childrens home of the Lord.

People like Blackwell and Keith Henry don’t have a christ focused mindset. Really they just need new blood to come in and take over. Start at the top, and work your way down and see who the people who would lie down their lives for christ and keep those people. Because if you have people who are active in church and in their faith on a daily basis working for the kingdom of heaven. Then things might change.

You do have really good Godly minded people who work for the Baptist Children’s Home of North Carolina, but they are told things like – That if they want to cut down their hours they need to cut the bible studies and going to churches and don’t take the children to VBS. And that we aren’t paying you to do that. And thats hard on some of theses truly Godly minded people.

 

Now my own Father was fired from the Baptist Children’s Home, because he stood up and said that being alone with single women was ungodly and was putting him in a bad spot. Now they would say that he refused to do his job, but when they called him to say that he “quit” you’d never guess what he was doing. He was picking up a women from work. He was doing his job. If someone would have come forward and said that a women would be more suited for this job and roll in this part of the mission my father would have respectively stepped down but no they told him that he “quit”. This was not what my father’s job was even in the first place. They told him he “quit” and they are tarnishing his reputation.

 

So I write this because I’m upset and I’m ready for a change. And I need help changing it. I can’t do it alone. Help me stand up and change the Baptist Children’s Home of North Carolina. Because Godly minded people are out there and they need our help to stand up for whats right. We can make the Baptist Children’s Home better, but we need new blood and we need Godly minded loving people who put the Lord first, people second and money last. We need some Godly people to raise up and make a change.

Stand up, its time for a change.

 

I am Shannon DeRose.