Dear Epipens and AuviQs

May 13, 2015 / Shannon DeRose / Leave a comment

Thank you for being a thing. Thanks for saving my life.

AuviQ thanks for calmly talking me through these moments in life where my heart beats fast as my hand holds you and I take a deep breath and put you in my leg to save my life. As my throat was closing slowly it opens up and I’m able to breath.

Thank you AuviQs and Epipens for being there when I’m going into a horrifying shock that is known as anaphylactic. Thanks for saving my life all the times you have.

Thanks for opening my air ways so I can breath and even opening them that one time when I almost waited to long to use you. Thanks for opening them up and letting me live.

Thank you AuviQ for being small so I can take a smaller bag, and be able to fit into my pocket and save my life when need be.

Thanks Epipen for saving me on that Friday when my friend had to use it on me. Thanks.

AuviQ thanks for that time a few months ago where you saved my life twice in one night once on the chase in my living room and again in the ride to the hospital.

Thanks to the people who make AuviQs and Epipens available and that make them small and make them so I am able to have them. Thank you so much AuviQ Thank you so much Epipen I won’t be alive without you.

Signed ShayWeasel… Thank you guys are a life saver.

Eggless Sugar Cookie Dough (Believe me its fantastically!!)

May 2, 2015May 2, 2015 / Shannon DeRose / Leave a comment

So… Its Shay-De foodie Friday!! And its the start of food allergy awareness month. Which means that I will be posting about it. Food allergies have been in my life since I found out I was allergic to cherries when I was a young child. But it didn’t change my life fully till I was 17 years old and my body was reacting to so much food.

I found out nine food allergies then. I now have gained more and I have over all about 22 food allergies, but thats putting some of them together. But yes I have food allergies, my body doesn’t like so many foods.

I don’t mind having food allergies, its hard to live with but its not horrible. Food allergies change your eating and it changes parts of your life but its just made me more fantastic then ever, and I love it. I don’t know why but they can for sure be highly annoying.

But since its Shay-De Foodie Friday lets get to the recipe part of this blog..

So here is the Recipe for eggless sugar cookie dough.. (This is just to eat not cook. I do not believe cooking it wouldn’t work, but I ate mine raw and it was fantastically wonderful)

1 ⅓ cup of flour (I used oatmeal flour, as we all know oatmeal flour is my go to flour.)

½ cup butter or butter

¼ cup raw sugar

¼ cup brown sugar

1 ½ teaspoon of vanilla (extract or from bean)

Instructions

Beat together the sugars and the butter till adorably fluffy or just fluffy if it doesn’t look adorable, do not be worried. I beat my together for sevens minutes.
Add the vanilla and beat for another minute
Add the flour slowly till all the flour is mixed in fully. It took me about five minutes to add it all and beat it.
Put in bowl, eat enjoy!!!!

I hope your week has been amazing and if you ar staying in this weekend then I hope its amazingly fantastic!!! Make this cookie dough and eat it and then feel fantastic unless your a spoonie with stomach problems then you might feel like horridness afterwards if this is the fact then.. Well I understand.

Thanks for reading this has been Shay-De Foodie Fridays if you would like me to make something center let me know in the comments below!!

Shayweaseling it!

I Won’t Fail My Failing Body

April 29, 2015April 29, 2015 / Shannon DeRose / Leave a comment

Today I ate lunch and then as my disease made up its mind that this food I had taken into my body was not going to stay, I went to the restroom and vomited, a few times. I tried not to make it a big deal or anything.

When I came out of the restroom, a lady stood there just looking at me and she said “Are you bulimic?” there are a few things about this question, one if the answer was yes that is not the way to ask a stranger in the restroom. But I answered “No I have a disease called gastroparesis my stomach is paralyzed and doesn’t work the way it should.” she then went “Oh well why do you have it?” I hadn’t ever had someone ask me this follow up question before. I answered “They don’t know the reason why. It might be genetics.” She followed up with this “Maybe you just haven’t taken care of yourself.” She then left the restroom and I stood there and looked into the mirror.

My collarbones have become so much more visible, its not by choice believe me. My legs are thin, my cute round face is less round theses days, even though I have a little left of my moon face from the meds a few weeks ago. I stood there and thought.

Its not fair to me, because I have a chronic illness that people feel the need to either tell me how to heal myself or tell me that I’m not taking care of myself. If I had cancer I would be brave, and cancer is hard to face, but I don’t understand why the fact that I “just” have a chronic illness that I should just deal with it. It doesn’t seem fair. I was born with illnesses and more illnesses have attacked my strong so strong body. I’ve been through more in my life health wise than most. I’ve had crazy days and I’ve been in a places where I had to make crazy hard choices.

My body is failing me. I didn’t fail it. I didn’t make myself sick. I just am sick. I’m okay with my illnesses hurting me but I’m not okay with people telling me Its my fault. I do not have cancer, no. I have an illness that is incurable. Its lifelong, Its painful. Its horrifying sometimes. I have things that are undiagnosed. I had a doctor straight up tell me that I’ll most likely be in some pain forever, and that he was sorry. I have had surgeries not many just two, I’ve had an air tumor in my nose.. What’s that? My doctors didn’t even know.

So no I didn’t fucking give myself theses illnesses Its not my fault. You can tell me off when I’m vomiting in the restroom, but only if you will hold my hair and then give my toilet paper so I can blow my nose and get all the vomit out it. I didn’t make myself vomit, my body is not working. My stomach has just stopped. My doctors are working to either find a med that works or a feeding tube might come into play or I might have to do some other stuff that I truly just don’t want to do. I want to go and live my life. I really want to go on that long bike ride.

I’m strong. I’m really strong, but you see me as an attention seeker in some weird public restroom, you didn’t ask my name, you didn’t tell me you were sorry this happened to me, no you blamed me. My body is not my fault. My mind is not my fault. The things that happen to me are not my fault. I only get to choose how I react to them. And man I’ve reacted damn well… I’ve done pretty good. I choose to wake up. I choose to keep going because I don’t see the choose to stop.

My body is failing me, but one thing’s for sure, I’m not failing my body.

This has been Wesday the day where I rant about whatever I please. And today I ranted… Don’t blame me for my illness, I will not fail my body.

Thanks for reading~ Shannon DeRose (Shayweasel)

Best Chocolate Chip Cookies (Gluten-Free, Corn-Free, Nut-Free)

April 24, 2015May 2, 2015 / Shannon DeRose / 2 Comments

Now if I’m being honest, I’d tell you that I love eating cookies, and I do it so much that I’m pretty sure I’ve found ways to make my oatmeal taste like cookies.

And if you give me a cake I’d be like I’m good, because its not cookies, so since I love cookies so much. When I was told that I was allergic to a lot foods, I had to go out and find ways to make different things.

Cookies being one of them. Enjoy Life chocolate chip cookies have been a lifesaver because everyone knows I want chocolate chip cookies. So I use those a lot and oatmeal. I mean man am I blessed to not be allergic to oatmeal, I do love me some oatmeal

But back to cookies so a few days ago I was wanting some chocolate chip cookies and I wanted them bad, so I pulled together everything I had to make them, and I, being me, was trying to find a recipe to work with and I couldn’t find a good one till, well, today. I found this recipe and I had to change it a tad, but it works and the cookies I made are so amazing.

So here is how you start off

Ingredients

eggs – 1 full egg and 1 egg yolk.

2 ½ cups flour (I used one and ¼ cup oatmeal flour and one and ¼ cup tapioca flour)

½ teaspoon baking soda

1 cup Brown Sugar packed

½ teaspoon salt

1 teaspoon vanilla extract

½ cup raw sugar (you can use white sugar I used raw)

¾ cup butter (I used dairy butter but any butter works.)

2 cups chocolate chips (I use enjoy life chocolate chips)

I preheat the oven to 325 degrees F (165 degrees C) line cookie sheet with butter or cooking spray or parchment paper, I only had butter so I used butter and they worked good. (I basically just put butter all over the cookie sheet)
Sift together flours, baking soda, and salt, set to the side.
In a bigish bowl I used my kitchen aid that makes everything easier. Butter that has been at room temperature for a while (mine was about two hours) and sugars together, I let it blend together for about 5 minutes to get that creaminess I feel it works better.
Add vanilla, egg and egg yolk and beat until well blended, (I let my eggs sit at room temperature for a little while you don’t have to do this step but I think it helps.)
After the eggs and vanilla are really well mixed together add the flour, baking soda and salt, Now be careful not to add it to fast. I add it slowly and then just till its blended then add the chocolate chips and let sit at room temperature for about ten minutes if its still kind of not right looking let it sit longer.
Put on pan anyway you please and then bake for 10-16 minutes my cookies happen to be big so they cooked for 16 minutes.
Let cool and enjoy!

So that my best chocolate chip cookie recipe!! I hope you all have a good Shay-De foodie Friday!

Come back next Friday for more food recipes and come back Sunday for randomness and come back Wednesdays for Wesday the day where I rant about whatever I please!!

Why weekends are hard…

April 12, 2015 / Shannon DeRose / 2 Comments

I hate ~~mondays~~ Fridays, I know what? Shay? How can you hate the weekend they are fantastic. One let me say I haven’t always hated them. And I still hate Thursdays more than I hate Fridays but for me I hate the idea of the weekend, that you have to go out and hang out with friends or if you don’t have plans then you are just going to die alone or become a cat lady.

I mean its not a big deal. I have been a nanny and my idea of a friday night was the parets going out and me making like 100 dollars thats my idea of Friday for a long time and when I wasn’t working I would sit in my living room watching TV shows or movies or I would be on tumblr for like nine hours.

So I don’t get where this you have to be busy on the weekend sleep in and go out and party or go to church on sunday. I don’t get it. I want to do what I do on a normal day. To me the weekend ends up normally being really boring and I don’t enjoy it because everyone is saying “Oh my I’m doing blah blah..” I mean even if I had a lot of friends who wanted to do stuff the weekend wouldn’t be when I wanted to hang out it would most likely be a random day.

But I want to say since my chronic illness kicked in over drive, the weekends end up being really hard on me. I feel like I am missing out on a part of live that I never knew I needed but I don’t need it. You might be someone in school or work the weekdays and when you get a free day its like fantasticness but to me it sometimes end up making me sad because I’m like I don’t have energy to do anything and its not going to change just because its the weekend sometimes I have good days but they are normally on a weird day like Tuesday and I get to make breakfast and go to the store, but my body doesn’t know that its the weekend. It does what it wants to.

So why am I telling you all this? Because I know that people with chronic illnesses might feel the same way, so if you know someone who has a chronic illness go over and watch a movie with them and don’t try and make them talk to much or anything just let them be but be there with them. It means a lot when you get a friend who can sit in the same room on their laptop as you and not talk but will say something like did you see this?

Or when we need to rant about shit you listen. Its hard because we might seem whiny but it really is that some of us aren’t around people. Don’t talk to people, and a lot of us don’t get to see very many people at all or only talk to people online.

The weekends are hard because its not just we can’t get out its that no one wants to stay in and no one wants to hang out with you.

When you are diagnosed with a chronic illness you normally lose half your friends right off the bat and it kills small parts of you. So yes, if you want to help make weekends better then just be there and say what’s on your mind.

My name is ShayWeasel and this has been a weirdish public blog post…

#spooniestrong #weekendssuck #fuckit